Monday, December 23, 2013

Why now?

I have debated on writing this blog for years. The sounds of our house and my day may be typical most days, but some days they are different. Some days they are overwhelming. Some days they are happy. Some days they are sad. Some days they are just simply frustrating. Some days they are long and feel like they are never going to end. The sounds are also changing as the kids are growing and yet, some of the sounds stay the same.

Today is December 23rd. Just a few days before Christmas and I am sick. Sicker (if that is a real word) than I have been in a long time. Thanks in part to stress and thanks in part to whichever of my wonderful colleague came to work and shared their Influenza A. It is bad enough that I have been all over the kids about hand washing and trying to keep us all healthy as Chad and Jon both heal from major surgery. We did get our FluMist this fall and I am told that I am lucky that I did for as sick as I have been.

I love Christmas. I love the lights, the music and the joy it brings. I am almost at a loss for words today as I am listening to Mark, 11 years old, still defending Santa Claus. The wonder, amazement and innocence that comes with his PDD-NOS can be such a blessing. Today I am listening to my 11 year-old sound like a small child. The anticipation and excitement of Santa coming has not been lost to age yet in him. Jonathan has done his best as the older brother to help "see" that Santa cannot possibly be real and yet Mark can hardly wait and still believes with every fiber of his being.

So why this blog?

I have decided that since each child/person who has Pervasive Developmental Disorder-Not Otherwise Specified are unique to themselves it is time to document and share our family's experiences, triumphs and defeats.

Mark was diagnosed with PDD-NOS officially 4 years ago. After many years of searching for answers for our bright little boy who could have melt-downs at the drop of a hat. And to put to rest the vaccination theory and Autism Spectrum Disorders theory. We knew something was different about Mark from the second he was born and was rushed to the NICU. Rushed so quickly that he was not even given a bracelet to identify him, just my husband being told "Dad follow, he's not tagged, yet!" So at our house we do not believe that vaccinations were the cause of our blessing named Mark.


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